Apert Syndrome Protocol
APERT SYNDROME BIRTH TO MATURITY TREATMENT PROTOCOL
Birth - 3 months
Total assessment (10 days)
3-6 months
| Craniofacial Surgeon |
Planning meeting with other specialists with a view to surgery - |
1 year old
Total review
Craniofacial Clinic
Hand surgery - one or two stage procedure
Postoperative assessment
1 - 10 years
| Craniofacial Surgeon | Yearly assessments and surgical workup for: facial advance or fronto-facial advance and bone grafts |
| Dentist | 6 monthly assessments |
| Orthodontist | Ongoing management |
| Photography | Yearly - pre and post operatively |
Teenage years
| Craniofacial Surgeon | Yearly assessment and surgical workup for Orthognathic surgery |
| Dentist | 6 monthly asssessment |
| Orthodontist | Ongoing managment and assistance in preparation for surgery |
| Photography | Yearly - pre and post operative |
Late Teenage years
| Craniofacial Surgeon | Yearly assessement and touch up surgery (soft tissue) |
| Orthodontist | Annual assessment, treatment and prosthetic dentistry |
| Photography | Yearly - pre and post operatively |
