Romberg Syndrome
Home > Medical Conditions > Craniofacial Conditions
also known as
Hemifacial Atrophy
Common Description
Romberg syndrome is a rare, incurable craniofacial disorder which is characterized by the slow atrophy of the subcutaneous (under the skin) muscle usually on half of the face (hemifacial atrophy). It has a higher prevalence in females and normally appears between the ages of 5 and 15.
The condition also causes neurological symptoms, including seizures and severe facial pain.
Medical Description
Characteristics
- Appearance of wasting of one side of the face
- Skin darkening on the affected side
- Hair loss that can be associated with absence of eyelashes and parts of the eyebrow
- Bony structures of the face can appear under-developed on one side
Our Recommendation
Protocol management by a multidisciplinary craniofacial team.
DDMS Process and Procedure
Professor David, has developed a protocol, in conjunction with the Australian Craniofacial Unit, that incorporates a multidisciplinary approach to treatment. This treatment extends from birth until early adulthood when full development is complete.
Summary
| Locations |
Adelaide |
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|---|---|---|
| Jakarta |
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| Surabaya |
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| Denpesar - Yayasan Senyum |
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| Sydney |
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| Launceston |
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| Hobart |
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| Kota Bahru |
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| Govt Funded | Medicare and Private Health rebate |
